So I have returned from my little excursion to the states, and will hopefully be able to jump right back into the swing of things. It is always refreshing to be away from my children for a short time, but inevitable that I start missing the very things they do to annoy me!! *smile* Oh well, what can you do.
Let's get this posting thing back on track too! I have already written other pieces to go along with EmmaLee's story but havn't published them yet, I feel they might be a bit outdated now and will work on that this week. I was contacted by another mother with a daughter also diagnosed with Netherton's Syndrome and was inspired to finish my journaling of living and dealing with it.
Thanks for your comments and interest in us and my blog!