So, I've been working on Part Three about my daughter with Netherton Syndrome, but I guess I'm finding it a little hard to write because I feel almost like I am complaining rather than explaining. I think an explanation needs to be preceded with a question, right?
It does prove very therapeutic to write my feelings down, and tell our story. I guess I'm just wondering if anyone is even reading it. I would greatly appreciate some comments with any questions you might have about us. Sure, ask anything... about the disorder, about our family, our life, etc.